Category Archives: #ankylosingspondylitis

Third Time’s a Charm

Here we go, Cosentyx, here we go! I’m like a cheerleader with this new immunosuppressant.A monthly shot only, the only downside I can see at this point (after three months on the med) is that those last few days before the next shot, my body starts to rebel. My feet ache, as do my ankles,Continue reading “Third Time’s a Charm”

Moods and Molecules

Since launching this blog, I’ve been on three immunosuppressants: Humira, Enbrel and now Cosentyx. Humira felt like a wonder drug to me until I started to crash for no apparent reason – crushing fatigue, foggy brain, confusion. I got lost in a doctor’s office, and I’m the one with maps in her head. Take meContinue reading “Moods and Molecules”

Bursting Into (In)flame

Quick #backpocketpost today I reflect on my experience this past Wednesday. I never really thought much about “systemic inflammation” before I was diagnosed with ankylosing spondylitis. I knew that my c-reactive protein level was way up, but I didn’t appreciate how high it really was, and my body was battling something that not only inflamedContinue reading “Bursting Into (In)flame”

Sharps Box

Yesterday I was due for my second COVID vaccine but I couldn’t get it because I’ve got a sinus infection. I’m on antibiotics for a sinus infection, which have plagued me my entire adult life — I’ve undergone two sinus surgeries, experienced more infections than I can ever count, and was gifted with very smallContinue reading “Sharps Box”