Here we go, Cosentyx, here we go! I’m like a cheerleader with this new immunosuppressant.A monthly shot only, the only downside I can see at this point (after three months on the med) is that those last few days before the next shot, my body starts to rebel. My feet ache, as do my ankles,Continue reading “Third Time’s a Charm”
Category Archives: #everythingisalwaysover
Carve the New Groove
In a recent Instagram post, I shared an experience I had the night of my second COVID vaccine shot. This was the post: It’s a very weird thing to inject oneself with an immunosuppressant drug and then, the very next day, get the second dose of the COVID vaccine. Last night, unable to sleep dueContinue reading “Carve the New Groove”
Bursting Into (In)flame
Quick #backpocketpost today I reflect on my experience this past Wednesday. I never really thought much about “systemic inflammation” before I was diagnosed with ankylosing spondylitis. I knew that my c-reactive protein level was way up, but I didn’t appreciate how high it really was, and my body was battling something that not only inflamedContinue reading “Bursting Into (In)flame”
Sharps Box
Yesterday I was due for my second COVID vaccine but I couldn’t get it because I’ve got a sinus infection. I’m on antibiotics for a sinus infection, which have plagued me my entire adult life — I’ve undergone two sinus surgeries, experienced more infections than I can ever count, and was gifted with very smallContinue reading “Sharps Box”
My Gay Boyfriend
I can’t remember a time when I didn’t love music. I’ve seen more live shows than I can count, and nothing else has the same ability to transport me to another time and place entirely. Whole relationships are captured in a single song. There were albums I didn’t listen to for years because of howContinue reading “My Gay Boyfriend”
A Parachute Out of Everything Broken (Part Two)
Our limbic systems leap to attention when we’re making tough decisions. It’s one of the reasons why some people can’t seem to make up their minds (outside the Libras among us, they’re excused), and why making that decision gets harder and harder the more you agonize over it. But if you make that decision withContinue reading “A Parachute Out of Everything Broken (Part Two)”
A Parachute Out of Everything Broken
(Part One) It’s been almost three months since my autoimmune disease diagnosis, one that took around 10 years to figure out. By the time all the signs were there, ankylosing spondylitis (AS) had taken up permanent residence, bought furniture, covered the walls in calcification, and launched an all-out assault on my spine. What started asContinue reading “A Parachute Out of Everything Broken”
Lots of Practice for Little Relief
First off, I want to mark #internationalwomensday and say that women hold up half the sky — and then some. I wouldn’t trade being a woman for anything, and I am continually inspired by the resilience, strength and power of women. Yay us. Last Friday I received a call from my rheumatologist’s medical assistant informingContinue reading “Lots of Practice for Little Relief”
Ankylosing Spondylitis (is a mouthful)
I was wrong when I assumed many of you knew what was happening with me, health-wise. After my recent Instagram post, I received several messages asking me just that. And since I can’t really spend a huge amount of time typing these days (my fingers fall asleep and my wrists scream), I’ll lay it outContinue reading “Ankylosing Spondylitis (is a mouthful)”
Kicking Pain
I should probably stop worrying so much about blogging perfection. That’s not the point of this exercise, after all. And I need to keep the words flowing as they are helping me make sense — or at least work through — what has been happening to me. We write what we know. This I know.Continue reading “Kicking Pain”
Everything is Always Over 