Third Time’s a Charm

Here we go, Cosentyx, here we go! I’m like a cheerleader with this new immunosuppressant.A monthly shot only, the only downside I can see at this point (after three months on the med) is that those last few days before the next shot, my body starts to rebel. My feet ache, as do my ankles,Continue reading “Third Time’s a Charm”

Moods and Molecules

Since launching this blog, I’ve been on three immunosuppressants: Humira, Enbrel and now Cosentyx. Humira felt like a wonder drug to me until I started to crash for no apparent reason – crushing fatigue, foggy brain, confusion. I got lost in a doctor’s office, and I’m the one with maps in her head. Take meContinue reading “Moods and Molecules”

Sharps Box

Yesterday I was due for my second COVID vaccine but I couldn’t get it because I’ve got a sinus infection. I’m on antibiotics for a sinus infection, which have plagued me my entire adult life — I’ve undergone two sinus surgeries, experienced more infections than I can ever count, and was gifted with very smallContinue reading “Sharps Box”

Ankylosing Spondylitis (is a mouthful)

I was wrong when I assumed many of you knew what was happening with me, health-wise. After my recent Instagram post, I received several messages asking me just that. And since I can’t really spend a huge amount of time typing these days (my fingers fall asleep and my wrists scream), I’ll lay it outContinue reading “Ankylosing Spondylitis (is a mouthful)”

Kicking Pain

I should probably stop worrying so much about blogging perfection. That’s not the point of this exercise, after all. And I need to keep the words flowing as they are helping me make sense — or at least work through — what has been happening to me. We write what we know. This I know.Continue reading “Kicking Pain”